Important Dates

  • Born: March 16, 1975
  • Diagnosed MFH Sarcoma: December 2008
  • Died: February 23, 2011

Wednesday, January 13, 2010

No Word Yet on Start of Radiation - January 13, 2010

Pete had his EEG this morning. We, including the neurologist (not the same as the neurosurgeon), don't really expect it to show anything abnormal. They told him he should be getting a call about the results in a couple of days.

There has been no word yet on when they intend to begin radiation. The radiation oncologist, Dr. W2, and the medical physicist have to meet sometime this week to discuss, plan and set up for the treatments. It's pretty delicate so I imagine it's best if they take their time and get it set up as correctly and accurately as possible.

Pete and I are both anxious to get the radiation started so that he can get back to the chemo. We were talking this morning after breakfast and we both feel that it would be good to request a CT scan of his lungs be done before he starts the chemo again. It's been so long since his last scan it seems that it would not provide a reasonable comparison for a future scan.

Pete has been having bad headaches off and on, most severe upon awakening, but they do subside as the day goes on and the pain pills take effect. He has also been having some tremors in his hands that come and go. He mentioned both to the neurologist when we were in to see him last week, but he didn't seem to be too concerned with either. Frankly, neither of us were very impressed with this doctor. He's the first one we've dealt with through all of this that sort of left me a bit turned off. Pete said that if he has to go back to a neurologist at some later date he'd rather try to find a different doctor.

Back to the headaches and tremors, it was suggested that Pete start journaling and keep track of when and what is going on so that we may be able to find some cause and effect for these things. Sounds like a good idea he should start putting into practice.

Maybe because the surgery went through so quickly it seems that things are now moving incredibly slowly by comparison.

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